Here is a collection of photos of Caleb before he was attacked.

 
This is Calebs journey from October till December – Early January. 
It started with Caleb being very tired for a week, then a cough, difficulty in breathing, then on the evening of the 6th October he stopped breathing….he was in hospital when this happened…
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Gettng loaded onto the Life Flight plane heading to Starship…a very worthy charity…..8 October 09….Caleb is breathing via ventilator…..

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Off the ventilator …on to hi flow oxygen….12 October 09

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Low flow oxygen and a smile…….18 Ocober 09….Still in PICU up at Starship

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Off the oxygen and heading home on the Life Flight plane…once again a great charity to support along with Starship and Ronald McDonald house…..who looked after Jan, Caleb and I for two weeks……23 October 2009…..

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In Wellington hospital….we are now faced with the reality that this is how Caleb is now….no real control of his arms, little control of his legs….feeding 100% down the tube…..30 October 09……..at this stage still no answers as to what is happening to Caleb….

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Calebs teddy became his best friend……big meeting this day with doctors, nurses, even our GP…..to be told Caleb probably has leighs disease, and he will not eat, or walk again…..2 November 2009……

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After two weeks in Starship PICU……four weeks in Wellington Childrens hospital…..two plane rides…..five ambulance rides….one seizure….lots of tests…..Caleb is home…..18 November 2009…..

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Caleb was at home for about a month before going back to hospital for his PEG operation…everyday was a challenge and different. We had lots of visitors and help from all sorts. This is Caleb with his grandad John ….5 December 2009…..

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On 17 December 2009 Caleb went back into hospital to have a PEG operation to help with feeding. After the operation Caleb was back in ICU due to continual blood tests….this photo was taken 22 December 2009…

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Caleb came home from hospital on Christmas eve…just in time for christmas albeit he was pretty tired. We felt he always perked up at home, he didn’t like the hospital at all…here he is surrounded by presents 25 December 2009….

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Since this disease first attacked Caleb, he lost the abilty to swallow (among other things) so he required constant sunctioning with our little vacuum cleaner…..we got pretty good at it….28 December 2009….

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Unfortunately this disease never let up and on the 30 December (my birthday!), Caleb was attacked again in the evening and stopped breathing.  He was rushed to hospital via ambulance and intubated in ICU.  At 3 oclock 31 December we made the hardest decision any parent would have to make, the tube was removed with the expectation that he would die in minutes.  Instead he perked up a bit, and with the help of the nurses he came home.  He had no sensation, no smiles, worse control but his eyes were still there, wondering what was going on.  This photo 1 January 2010.

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Cuddles with mummy…..he only really had control of his eyes after the last attack….2 January 2010…

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Feeding thru the PEG…..the ICU doctors told us not to worry about feeding him after returning home…..3 January 2010…

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Josh was always keen to help out……here he is giving Caleb some drugs to calm him down…..this was becoming a very strange waiting game….4 January 2010..

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Outside enjoying the bubbles…5 January 2010.

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Cuddles with nana…5 January 2010…This is the last photo we have of Caleb….he died at 9.05 am the next morning in his room in Jans arms……