Category Archives: Uncategorized

New info brochure on Mitochondrial Disease released

May 24th, 2016

Starship Children’s Hospital have released an information brochure about Mitochondrial Disease.  The brochure has been written by Dr Emma Glamuzina (metabolic consultant for the adult and paediatric national metabolic service), Levi Emery, John and Rebecca Parker.  The brochure is available online at http://www.kidshealth.org.nz/mitochondrial-disease

Firefighter car wash

September 7th, 2015

Firefighters across the country will be trading their hoses for sponges for a charity car wash on Saturday 19 September. Crews from Hamilton Fire Station are fundraising to help Starship fight Mitochondrial disease. The funds raised will go towards providing more training, awareness, and a hope for a cure for children and families living with […]

Mito Fight Night

July 27th, 2015

Charity Boxing between Police, Firefighters, Department of Corrections and and Healthcare all to raise money for Mitochondrial Disease Fundraising – New Zealand Our incredible novice fighters are stepping up the challenge of 12 weeks training, then into the ring. For all ticket inquiries please contact Carole at carole.foster@police.govt.nz Name of Event: Mito Fight Night Date: […]

Mazda O Rock event

June 6th, 2015

On May the 17th several of our mito families got together to compete in the Mazda O Rock obstacle course event in Auckland. Every one came sporting green and had an awesome day. We ran the 5 km obstacle event to raise awareness for mitochondrial disease, with several of the mito kiddies cheering us on […]

Jeans for Genes Fundraiser

February 24th, 2015

Huge thanks to Temira Hetherington for organising this event for Mito.

UK Parliament approves controversial three-patent gene therapy.

February 4th, 2015

The British parliament has voted by a clear majority in favour of allowing IVF babies to be created using genetic material from three people. The vote makes Britain the first country to legalise the technique known as three-parent IVF, where babies would have DNA from a mother, father and female donor. Doctors say it can […]

How many individuals are affected by Mito?

January 16th, 2015

Every 30 minutes, a child is born who will develop a mitochondrial disease by age 10. While exact numbers of children and adults suffering from mitochondrial disease are hard to determine because so many people who suffer from mitochondrial disease are frequently misdiagnosed, we now know the disease is approaching the frequency of childhood cancers. […]

Related Diseases

January 14th, 2015

Mitochondrial disease can look like any number of better known diseases, including: Autism, Parkinson’s disease, Alzheimer’s disease, Lou Gehrig’s disease, muscular dystrophy and chronic fatigue, among others. Adults and children with it can have features similar to other disorders like: Epilepsy, Myopathy, Developmental Delay, learning disabilities and Fibromyalgia. Research shows that mitochondrial dysfunction is often […]

If Mitochondrial Disease is So Common…

January 8th, 2015

Question: If mitochondrial disease is so common I wonder why it took so many years to diagnose? Answer: Because mitochondrial disease is multi-systemic, it is hard to diagnose. Overview of Mitochondrial Disease: Mitochondrial disease or dysfunction is an energy production problem. Almost all cells in the body have mitochondria, which are tiny “power plants” that […]

Mitochondrial Disease in the Classroom

December 31st, 2014

For children with mitochondrial disease, the requirements of the average school day present some of the most difficult challenges. Occupational Therapy practitioner, Susan Orloff describes fatigue and treatment within the classroom. These children often seem to work in “spurts” and then “peter out,” becoming lethargic and finding it difficult to concentrate. It is essential to […]